Hi, I'm really starting to struggle with my Colitis, just finished my last infliximab infusion and it's looking like it's failed 👎 so last resort is surgery... Basically I need a new job, currently very depressed, stressed and unhappy at my job but I can quit as need money but can't start a new job and then expect them to be happy with time off for surgery?! Ohh I'm so confused and don't know what to do! Any advice?
That’s a tough one!!! To put it simply, being a grown up sucks, and being a grown up with a chronic illness sucks even more.
We have to make decisions and choices that affect our lives, never knowing for sure exactly how our illness might (‘scuse my language) fuck us over in the process. And it’s a really shitty thing to deal with. We have to factor it in to everything we do, regardless of whether we are in remission or actively experiencing symptoms.
I am usually pretty good at advice if I know people and heir situations well and I’m afraid I don’t know yours at all so my advice will be rather generic.
Essentially, listen to your body and do what is right for you. Don’t let other people tell you what to do, because they don’t live your life and your struggles, so you have to listen to what you need specifically.
As for surgical intervention, and the fear of it for a lot of people, I always say the same thing. Don’t let the fear of the future stop you or hold you back from living now. Live like every day is your last, because you could get got by a bus tomorrow - every day is a risk, we just have a few more of them as IBD sufferers. Carpe diem!!
Hope that helps? X(If not, I open the floor to my followers to interject with pearls of wisdom!!)
I was just in a similar position - too sick to work my current job, but scared that nobody would take me on. I applied for a job last month and got an interview the next day. I was completely honest and open about my situation, told them how ill I was, that I’d been off work sick for the last six months and that I just wanted a job that was less physically demanding/draining. I even told them that I would possibly have to be in hospital in the 3 month trial period, and didn’t even wear a wig to the interview to hide my bald head. I got a call two days later offering me the job and asking for a fit note from my doctor to assure that I would not be forced into doing any jobs/hours that would hurt me. All I can say is, take the plunge and be honest. Things might work out better than expected, and i hope they do :)